Here at the MCTFR, securing all identifying participant information is very important to us. We take every precaution to safeguard our data and participant information. We follow all guidelines set forth by the Institutional Review Board, which oversees research at the University of Minnesota.
Before each assesment, all participants sign a consent form that outlines their participation and descibes our confidentiality procedures. Minors sign assent forms, and we obtain parent consent for all participants under age 18.
"You have been asked to participate in a research project conducted by faculty and staff of the University of Minnesota. The study seeks to identify the genetic and environmental influences on the development of psychological traits.
You were selected for this project because you are a twin born in Minnesota or you are part of a sibling pair in targeted age ranges. Any information you give in connection with this study will remain confidential.
- No individual names will be identified in written reports of this study.
- We will not release or discuss your test results with any other member of the family.
- This project has been awarded a Certificate of Confidentiality from the U.S. Public Health Services.
- We may not be compelled to identify research subjects in any civil, criminal, administrative, legislative, or other proceedings, whether Federal, State, or local.
- This authorization is waived should you consent in writing to disclosure or should you voluntarily disclose characteristics that identify you as a participant in this research.
There are two exceptions to the confidentiality protections.
- First, under Minnesota state law we are required to report sexual or physical abuse of a child to the appropriate county child protection agency.
- Second, if an imminent life-threatening situation involving self or others is uncovered, proper authorities would be notified as appropriate.
Your decision to participate in this study does not commit you to participate in these future phases of the study. You are free to withdraw from the study at any time."